Practical FND Management: Daily Life Hacks

FND LIFE HACKS BY FND AWARE NZ

 

Professor Jon Stone - Functional Neurological Disorder (FND) and MS - looking for a treatable cause of disability

 

Professor Jon Stone - Functional Neurological Disorder (FND) and MS - looking for a treatable cause of disability

Why do people get functional neurological disorders? - DR R GRUNEWALD ; Sheffield Teaching Hospitals NHS Foundation Trust

108,200 views Oct 1, 2021

Dr Richard Grunewald explains why people get functional neurological disorders

 

DR MATTHEW PHILLIPS (WAIKATO, NZ) ON FUNCTIONAL NEUROLOGICAL DISORDERS

 

11,683 views Nov 9, 2024

This presentation was made for medical students and junior doctors on Functional Neurological Disorders (FND) - one of the oldest, most misunderstood, and challenging areas in neurology. I would like to be clear - these conditions are complex, not easy to diagnose, and we still have much to learn. FND should never be used as a diagnosis of exclusion or a way to dismiss patients. A thorough workup to identify potential co-existing structural or metabolic problems is essential. Many of the most complex patients have both FND features and underlying structural, metabolic, or other organic issues - missing these is a serious mistake. When I refer to CFS, fibromyalgia, IBS etc. as “cousins” of FND, I simply mean that they frequently overlap and may share elements of abnormal brain processing (predictive perception of internal signals). This does not mean they are the same as FND, nor that they are purely or mainly psychological. Both structural and metabolic factors can play important roles, sometimes triggered by - or triggering - brain processing changes. The direction of causality likely varies between individuals. This needs more research. Last, helping people with these disorders can be very rewarding when done carefully and individually. References are on the final slide. For more on predictive processing in the brain, see: “The Integrative Brain: Functional Units in Predictive Processing” https://t.co/CmHLPJhYWv Sincere regards, Matt.

FND EXPLAINED CLEARLY - RHESUS MEDICINE

FND EXPLAINED CLEARLY BY RHESUS MEDICINE

 

RECOGNISING FUNCTIONAL SEIZURES - PROF JON STONE

WORLD RESPECTED NEUROLOGIST, PROFESSOR JON STONE

ON

RECOGNISING FUNCTIONAL SEIZURES

 

OL' FND SONG

A SONG ABOUT FND

 

MYTHBUSTER - FND IS FAKE

FUNCTIONAL NEUROLOGICAL DISORDER IS OFTEN DISMISSED AS FAKE OR FICTICIOUS DISORDER

 

MYTHBUSTER - FND IS NOT ATTENTION SEEKING

BUSTING MYTHS ABOUT "ATTENTION SEEKING" VS FND

 

WELLWORKS CATALOG

 THE .PDF CATALOG OF PRODUCTS RE CANANBIS

https://drive.google.com/file/d/1iWcimCMmAuVREjm_qnmw05C227Hskf1X/view?usp=sharing

No area of stroke research should be left behind

 More than 12 million incident cases of stroke are thought

to have occurred in 2019, when stroke was also the

second-leading cause of death and the third-leading cause

of death and disability combined. Thanks to the efforts of

stroke researchers and study participants, many advances

that might help to reduce this burden have been made

over the past two decades. Much of this progress has

been in acute management and secondary prevention of

ischaemic stroke, and as this issue of The Lancet Neurology

was going to press, results from several trials testing

such approaches were scheduled to be presented at the

8th European Stroke Organisation Conference (ESOC),

on May 4–6, 2022, in Lyon, France. If such progress is to

continue, and similarly impressive advances are to be

made in primary prevention, haemorrhagic stroke, and

longer-term care, all areas of stroke need to be a higher

priority for research funding.

https://drive.google.com/file/d/1eGQds8AyZjDQXgkdnjDX8UgqCWX88ZTA/view?usp=sharing

The use of amantadine in catatonia

 We read with interest the excellent

Personal View by Olivier Rascol and

colleagues on the use of amantadine

in Parkinson’s disease and other

movement disorders.1

One movement

disorder for which amantadine

has shown some benefit but the

authors did not mention is catatonia.

Catatonia is a neuropsychiatric

syndrome that occurs in association

with psychiatric disorders such as

schizophrenia and bipolar disorder,

and also various neurological diseases,

including autoimmune encephalitis.

Characteristic clinical signs include

stupor, mutism, posturing, catalepsy,

echophenomena, mannerisms,

stereotypies, and negativism.

Catatonia has been associated

with substantial morbidity and

complications, including pneumonia,

acute kidney injury, and pulmonary

embolus.

https://drive.google.com/file/d/1EVEua8i4HrJighmDezUBaBIs3NOnw9aq/view?usp=sharing

FND Functional Neurological Disorder in Aotearoa/NZ 3.4.24

 THIS IS A POWER POINT USED IN CONFERENCE WITH NEUROLOGIST M PHILLIPS AND THE HEAD OF MEDICINE IN 2023

https://drive.google.com/file/d/1ZgLKSDnjE9Ss85-rT5xQWTbRr2CJEoMM/view?usp=sharing

HOW TO MANAGE CRPS FLARES

 MANAGIN PAIN IS DIFFICULT, HERE IS A GUIDE TO METHODS USED BY PATIENTS

https://drive.google.com/file/d/1bOVskQ_qScDKdf_dgSWqkfZSWWJ3j0rm/view?usp=drive_link

FND AS A SECONDARY CONDITION

 Functional neurological disorder (FND) is a complex condition that is caused

by various triggers and presents itself in unique ways differing from person to

person. Someone with FND might present with similar symptoms as someone

with a Stroke, Parkinson’s Disease or Epilepsy for example. However, instead

of it being structural, it is functional – a disconnect between the brain sending

signals, and the body receiving them. As well, people with FND can also have

epilepsy and other comorbidities. The mind/body connection can get “glitchy”

and has trouble processing sensory inputs and emotional overload. This

sometimes happens randomly on a neurological level, sometimes there is a

(direct correlation between the trigger and symptom - cause/effect) stress

trigger, which can be causing an overwhelming amount of any emotion, and

sometimes it’s a sensory overload in the environment which causes physical

or mental symptoms. This does not mean that symptoms are psychological

and that this is a mental disorder or “attention seeking behaviour” as that is

outdated understandings and simply inaccurate according to new research

and observation. Behaviour means having a choice to do something, these

symptoms are not chosen by the person with FND however are reactions to

stress and overwhelm. Some common symptoms may include arm and leg

weakness, seizures, fainting, ticks, tremors, intense pain, and the list may go

on and on for some people. The nervous system generally can be on high

alert and hypersensitive to triggers. That is, until the person’s stress bucket is

emptied enough and equipped with enough coping skills to manage. (Written

by Katerina Giovos, 2023).

https://drive.google.com/file/d/15t4eCe9ij7-NQnLliZ3Qq3SjyZfsihLS/view?usp=drive_link

After Years of Being Misunderstood Jayelynn Weinel Shares Her Story to Bring Hope to Others Living with Functional Neurological Disorder

 Doctors treated her symptoms, offered different diagnoses, and tried various approaches, yet nothing fully explained what she was experiencing. Living with an illness that others couldn't see was frustrating enough, but living without answers made the journey even harder.

https://www.mymalonetelegram.com/online_features/press_releases/after-years-of-being-misunderstood-jayelynn-weinel-shares-her-story-to-bring-hope-to-others/article_cd319009-ee88-577c-ab7b-c25f24fb4adc.html

Neuroscience rotation gives student a chance to explore brainy interests

 The Akakpo-Ulloa Family Neuroscience Scholarship is designed to foster interest in neurology and psychiatry, and provide exposure to multidisciplinary care.

https://www.kumc.edu/school-of-medicine/campuses/wichita/about/news/news-archive/neuroscience-rotation-gives-student-a-chance-to-explore-brainy-interests.html

He Had Up to Seventy-Eight Sneezing Attacks a Day, and the Fix Was in His Arm

 They looked exactly like sneezes. Repeated contractions of the diaphragm, Forced exhalation through the nose, tic-like rhythmic vocalizations layered on top. Strong smells often set them off, though they could also arrive at random.
They were not sneezes.
A 32-year-old teacher reached a functional neurological disorder clinic having lived with them for nine years. At presentation, the attacks were lasting up to 10 minutes and coming several times a day, reaching a maximum of 78 episodes. He reported episodes that woke him at night, though without a sleep study, clinicians could not confirm whether they occurred in true sleep or early wakefulness.

https://www.medicaldaily.com/functional-sneeze-functional-movement-disorder-case-report-477880

Functional neurological disorder: Practical management (SCIENCE DIRECT)

 Functional Neurological Disorder (FND) is a common and disabling condition seen by nearly every clinician in nearly every clinical setting. There are multiple subtypes with seizure and motor/movement being the most common. There is high health care utilization and costs, and many patients have a chronic course and remain disabled. It is clear from research over the past two decades that abnormalities in brain network activity are implicated in the pathophysiology of FND. Diagnosis requires positive criteria and knowing how to obtain a good history and avoid common pitfalls. There are evidence-based treatments and expert consensus recommendations. A multidisciplinary team knowledgeable about the disorder is important for the best outcomes but there is much more work to be done. This review will focus on the practical aspects of diagnosing and managing FND.

https://www.sciencedirect.com/science/article/pii/S187874792500090X

FND GUIDE

 FND describes neurological symptoms like limb weakness, tremor, numbness or blackouts, related to the movement and sensation parts of the nervous system…..

• Caused by a PROBLEM with the FUNCTIONING of the nervous system
• A “software” issue of the brain, not the hardware (as in stroke or MS)
• With positive diagnostic features typical of FND
• Cause day to day difficulties for the person who experiences them

https://neurosymptoms.org/en/